Lazuli Green Island Mama

Lazuli Green Island Mama

Friday, March 1, 2013

One little girl's Vanishing White Matter

This isn't a flippity pippit blog post. 

I have never met Chloe Saxby but I do have the pleasure of knowing her beautiful Aunt Nic. If Chloe is anything like her aunty, being a sparkling disco duck with the warmest heart and biggest sense of fun would be a piece of cake.

Chloe is a 4 year old with a rare and degenerative brain disease. It's called Vanishing White Matter Disease. Her life expectancy is now 5-10 years. 

Chloe and her family live in Wollongong, NSW Australia. If there is anyway you could help to make Chloe's life more comfortable, or assist her parents in their journey and provision of Chloe's increasing needs, please direct your energies and resources their way. You'll find more information at

Thank you for visiting this blog today.

1 comment:

  1. Contact Rare Disease United Foundation
    This beautiful exhibit is traveling to medical schools, research institutes and hospitals around the globe, encouraging the medical community to look “beyond the diagnosis” to the patient.